November 2021

News & Notes

Before the feast, get your family and friends together for our 6th annual Dash for Dravet on Turkey Day! Register by TODAY, November 15th, to have your runner's bib and our new Turkey Trot t-shirt in hand for Turkey Day.
Caregiver Connect is a collaboration between DSF and Greenwich Biosciences with programs for caregivers and families. 
Partners Against Mortality in Epilepsy (PAME) has a Memory Wall to remember loved ones who have passed.
In this Community Spotlight, meet The Odlaug, Nusslock, and Brennan Families and join us in thanking and congratulating them on reaching their fundraising goal of $1 million for DSF!
Stoke Therapeutics released interim safety, pharmacokinetic, and CSF exposure data from their Phase 1/2a MONARCH trial of STK-001 in individuals with Dravet syndrome.

Upcoming Events

Nov 1 - Dec 31
November 25
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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