Thank you for visiting.

Andrew and Kimberly blessed our family in September 2017 with the birth of Anna Grace. In her short life she has given us so much love and joy.

Anna was diagnosed with Dravet syndrome in early May 2018 after suffering from a number of prolonged seizures.  She has been in the hospital emergency room and in ICU a number of times over the last 2 years.  Dravet syndrome is a rare and catastrophic form of epilepsy beginning in childhood.  We strive to remain optimistic and focus on reasons for hope, of which there are many.  A video of their journey with Anna and Dravet (April 2019) can be found here!

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families

The total raised to date also reflects the efforts of other family members;  Andrew, Kim's sister Chelsea, and Andrew's sister Erika.

Anna's grandfather Ted joined the Dravet Foundation Board in March 2019 to offer his experience and know-how of working in the healthcare industry to the foundation and patient community.

Our entire family is committed to supporting Anna and the work of the foundation.  The cause is very important to us, and we appreciate all the support we can get for our dear Anna and all the children like her!

Never give up and find a cure is our mantra.  Our sincere thanks for anything you can contribute.  Together we can make a difference!

Sincerely yours,

The Odlaug, Nusslock and Brennan Families