Dear Friends,

With the new year in full swing, we have a lot of exciting updates to tell you about, including new team members, clinical trial opportunities, and events. Our staff is the driving force behind executing our organization's mission and goals. As we grow by leaps and bounds, we are delighted to introduce you to the newest professionals of #teamDSF, who will help amplify our efforts in 2023 and beyond. Meet the team here.

Keep reading below to learn what's coming next at DSF, and how you can get involved. Our goal is to advance treatment and find a cure for those with Dravet syndrome. We look forward to having you join us as we continue our fight to make life better for our Dravet syndrome families.

Thank you,

Dravet Syndrome Foundation

2023 Clinical Trial Opportunities

Research is our best hope for advancing treatments and eventually finding a cure for Dravet syndrome and associated epilepsies. Research is not just the responsibility of scientists and doctors. Patients must participate to whatever extent they can, including 1) sharing their information so researchers can understand how Dravet syndrome affects individuals; and 2) volunteering for clinical studies or trials to help doctors understand how treatments affect patients.

In rare diseases such as Dravet syndrome, it can be difficult for potential treatments to reach the required number of participants to be granted FDA approval. In the absence of large numbers, we must leverage our resources, which include our strong patient community.

See which clinical trials are currently available and if someone you know qualifies by reading more here.

News and Events

• Get Your Dravet Swag - Show your support for the Dravet Syndrome Foundation with items from our online shop. We have everything from tumblers, stickers, t-shirts, and more. Shop now.
• Educational Videos - DSF offers a variety of educational webinars and videos to help professionals and families navigate a Dravet syndrome diagnosis. See our educational videos here.
• Unite Us - DSF has entered into a partnership with Unite Us, which connects families with vital services, such as peer support. The organization bridges the gap, ensuring families have what they need to move forward, including meeting needs such as food, clothing, and transportation assistance. Learn more.