Dear Friends,

Do you know a hero? Nominations for Ciara’s Spirit of Hope Award are open now through May 13, and we need your help finding our next hero to celebrate! Ciara’s Spirit of Hope Award is designed to honor individuals who have gone above and beyond, and who have made a significant contribution for the Dravet community through their work with DSF. Submit a nomination today! 

Just as we honor our DSF families and friends, we invite you to join us in honoring our children through our second Wings of Hope Butterfly Release. For just $25 you can sponsor a butterfly in honor or in memory of a loved one. Wings of Hope will take place on June 25 in Fort Worth, Texas at our 2022 Conference to celebrate hope and remember those who have passed. 

From parents and siblings to families and friends, we know our DSF community is full of incredible people making an impact on those living with Dravet syndrome. As always, we remain grateful for you.

Warmly,

Dravet Syndrome Foundation

Siblings Are an Important Member of Your Team

April 10 is National Sibs Day, and we've got the perfect way to celebrate! Families can request one of our VIP Sibling Kits, which includes a journal, a positive affirmations coloring book, a stress putty, and more. It can be hard for brothers and sisters when a sibling has a chronic illness like Dravet syndrome — that's why our kit is designed to remind siblings how important they are and to provide simple communication tools that let those around them know how they’re feeling. Get your kit here!

News and Events

• Give Up Your Cup: We’re in the final stretch for Give Up Your Cup. As March comes to an end, give up your coffee, tea, or other “cup,” then donate what you would have spent to DSF. You’d be surprised how much of a venti-sized impact it can make!

• DSF Conference: Join us for DSF’s 5th Biennial Conference on June 23-25, 2022, in collaboration with Cook Children’s Medical Center in Fort Worth, Texas. This 3-day event unites all groups committed to improving the lives of those with Dravet syndrome – including families, caregivers, clinicians, researchers and pharmaceutical professionals. Apply for our family scholarship TODAY to make sure you can attend!

• Miles for McCall: Dan is a competitive ultra-cycler preparing for the world’s toughest bicycle race, Race Across America, in 2024. As he trains and competes, Dan has dedicated his cycling journey to raise awareness and funds for Dravet syndrome research. Follow along to cure Dravet syndrome. Join the fight by donating or even cycling for a cure yourself!