Make a gift. Make an impact.
Dravet syndrome is a rare genetic epilepsy disease and families have few places to turn for continued support year after year. The amount of unknown into the world of seizures can take a toll on families. Thankfully, Dravet Syndrome Foundation (DSF) offers hope and support throughout a patient’s lifelong journey with Dravet syndrome. DSF connects parents and caregivers to local chapters, specialists across the world and constant updates into new medical research and interventions. DSF guarantees patients and families have the tools and support they need to assure the best quality of care for their loved one. DSF supports members by funding research for treatments and a cure; through family support and advocacy programs; by hosting educational conferences and workshops; and by offering support for bereaved families.
Zachary was diagnosed with Dravet Syndrome shortly after his first birthday. He loves four wheeling, and being with family in the great outdoors. Dravet Syndrome is lifelong and there is no cure.We pray and hope that there will someday be an answer for him and his brothers and sisters living with Dravet Syndrome.