Novemer 2020

News & Notes

Before the feast, get your family and friends together for our 5th annual Dash for Dravet on Turkey Day! Register by TODAY, Monday, November 16th to have your runner's bib and DSF neck gaiter in hand for Turkey Day.
This #MemberMonday meet Jim Brennan. In spite of having to postpone this year's Dance for Dravet fundraiser, Jim has still managed to raise over $170k for DSF in honor of his great-niece, Anna.
Join DSF and a panel of experts on November 23 at 12p:00 PM ET on RareDiseaseLive for an interactive, virtual education program created for caregivers of children or adults with Dravet syndrome.
DSF, in collaboration with LGSF and TSC, has launched the Seizure Action Plan Coalition to education the community about seizure emergency rescue protocols and the importance of seizure action plans.
Join Partners Against Mortality in Epilepsy (PAME) on December 7th at 2:30pm ET for a two-hour virtual session including a bereavement story and updates on new research and advocacy.

Upcoming Events

Nov 1 - Dec 31
November 18
November 26
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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