April 2021

News & Notes

JOIN THE FIGHT and show your support through our t-shirt fundrasier on Custom Ink, which runs through April 30th. Orders are estimated to ship around May 18th to assure you have them in hand for Dravet Awareness Month.
Please join DSF is thanking Dr. Ian Miller for serving on our Medical Advisory Board. Dr. Miller has accepted a position as Vice President of Clinical Development with Marinus Pharmeceuticals on March 1.
DSF is lucky to have dedicated individuals volunteering their time to serve our community. Please join us in thanking our incoming and outgoing board presidents, Kate Hintz and Nicole Villas.
Eisai Inc., invites patients over 2 years old with Dravet syndrome to participate in the Phase 3 Clinical Trial of MOMENTUM 1, as an adjunctive therapy.
Is your Super Sibling interested in getting involved with DSF, but not sure where to start? We have the perfect opportunity for him or her!

Upcoming Events

Now - April 30th
June 1-30
June 24-26
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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