August 2021

News & Notes

Mark your calendars and join DSF for our virtual Steps Towards a Cure event! Since many in our community are not comfortable with in-person events yet, in place of our annual walk and race events we have put together a virtual 1 mile walk, family stroll, or run across the United States that everyone can participate in!
Be Seizure Ready for back to school! The Seizure Action Plan Coalition recently announced their 2021 Back to School initiatives.
In this Community Spotlight meet Dan Hartley and learn about his new multi-year fundraising and awareness event – Miles for McCall!
DSF partnered with the medical advisory board and Dr. Danielle Andrade's Adult Epilepsy Program to develop a survey to collect information on COVID-19 vaccination and individuals with DS.
To address the suboptimal exposure of Dravet syndrome in adult neurology training, DSF is promoting an 8-week curriculum for adult neurology residents. Participants will be compensated with a $100 gift card.

Upcoming Events

August 15 - 21
October 2 -30 
October 22
St. Louis, MO
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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