February 2021

News & Notes

DSF is challenging you this March to Give Up Your Cup!
Give up your cof fee, tea or other "cup" for one day, one week, one month, or, anything in between, then donate what you would have spent to DSF.
Community member Barbara Swoyer shares parents' perspectives on what reframing means and how it might be helpful, or even not, when caring for a medically complex child.
PAME (Partners Against Mortality in Epilepsy) is hosting a free webinar series, beginning with, Grief and Death in Epilepsy: Learning From Loss, on March 2nd.
Eisai Inc., invites patients over 2 years old with Dravet syndrome to participate in the Phase 3 Clinical Trial of MOMENTUM 1, as an adjunctive therapy.
The DSF Patient Assistance Grant program helps families obtain medical equipment and educational aides not covered through insurance. Opens March 1st.

Upcoming Events

Now - Mar 31
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

Having trouble viewing this email? View it in your web browser

Unsubscribe or Manage Your Preferences