July 2021

News & Notes

It's not too late to join DSF on July 24th to Party in Your PJs for Dravet!
In place of our annual gala we are hosting a virtual interactive pajama party where we are honoring our Scientific Advisory Board and YOU are on our guest list!
Register by July 16th to receive your party pack in time!
Zogenix is hosting a Photo Diary charitable campaign and contest on Facebook. For every “Like” or share of a photo, Zogenix will donate $25 to both Dravet Syndrome Foundation and Epilepsy Foundation, up to $50,000 in total.
Are you looking for a way to truly have an impact on the future of Dravet syndrome? DSF is currently seeking professional, committed individuals who are passionate about finding a cure for Dravet syndrome for their Board of Directors.
DSF's Connect Grants program offers small grants that allow caregivers/families to host a regional gathering to bring together patients and their families.
Meet community member Sarah Lango and her daughter Avery. They partnered with some local businesses during Dravet Awareness Month and raised nearly $1,800!

Upcoming Events

July 24
August 7
Tyngsborough, MA
August 13
St. Albans, MO
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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