June 2021

News & Notes

Mark your calendars and join DSF on July 24 to Party in Your PJs for Dravet! We decided to bring this virtual interactive pajama party back and YOU are on our guest list!
DSF's 2021 Research Grant Program is now open and accepting applications for research directly related to Dravet syndrome, through four funding programs. Applications for this funding cycle are due by September 10, 2021.
Join us for a 3-part series, "Caring for a Loved One with DEE and Dravet Syndrome: Harnessing the Power of Knowledge to Enhance Diagnosis, Reduce Seizures, and Improve Overall Quality of Life for All" on June 30th.
Please join us in thanking Wendy Fry for her role as Director of Family and Caregiver Engagement. Wendy recently stepped down from her role to focus on her family.
Meet community member Nathan Blatt. He competed in the Ironman 70.3 Chattanooga and raised $10,569 for DSF in honor of his two sons!

Upcoming Events

June 1-30
June 24-26
July 24
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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