May 2021

News & Notes

June is Dravet Syndrome Awareness Month and June 23rd is International Dravet Syndrome Awareness Day. There are many ways you can help DSF's efforts this June to spread the word about Dravet syndrome and the needs of our community.
Our 1st annual Dravet Remembrance Day will take place on June 15th and will be a time for our community to reflect and remember those who we have lost to Dravet syndrome.
With the postponement of our 2020 conference due to the pandemic, we are offering a virtual learning opportunity to bridge the gap until we can meet again in person next year.
Please join us in welcoming our newest board member, Ross Nicholas, who officially began his term on April 15, 2021.
Zogenix has launched a Global Access Program for FINTEPLA® (Fenfluramine) Oral Solution.

Upcoming Events

June 1-30
June 23
Alvarado, TX
July 24
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

Having trouble viewing this email? View it in your web browser

Unsubscribe or Manage Your Preferences