October 2021

News & Notes

Before the feast, get your family and friends together for our 6th annual Dash for Dravet on Turkey Day! Register by November 15th to have your runner's bib and our new Turkey Trot t-shirt in hand for Turkey Day.
DSF worked with our Medical Advisory Board to help address the issues that families with Dravet syndrome face during the transition process: adult providers that are not familiar with the medical needs of an individual with Dravet syndrome.
Mark your calendars and join the DSF Family Network for our 5th annual Day of Dravet workshops. There is one more live session left this month. You can also watch previous sessions on-demand through November 30, 2021.
Join us in congratulating DSF Scientific Advisory Board Co-Chair, Lori Isom, PhD on being elected to the National Academy of Medicine, one of the highest honors for a clinician and scientist. 
On Saturday, October 16, 11 Dravet families joined friends and family for Steps Toward A Cure: Atlanta. This 1 mile walk, held at Blackburn Park in Brookhaven, GA raised over $8,500 and counting!

Upcoming Events

Nov 1 - Dec 31
November 25
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

Having trouble viewing this email? View it in your web browser

Unsubscribe or Manage Your Preferences