September 2021

News & Notes

Mark your calendars and join the DSF Family Network for our 5th annual Day of Dravet this October! Sessions will focus on daily living and caregiver concerns. Super Siblings can join fun 90-minute breakout sessions each week. Join us for any and all sessions that are of interest to you!
DSF has developed a Newly Diagnosed Patient Kit for patient families located in the U.S. The kit includes a printed guide, medication bag, and other materials.
In 2018, DSF developed a 5-year strategic plan to articulate our long-range direction and priorities. We are pleased to offer our 3rd annual update on our progress.
DSF's scientific director, Veronica Hood, PhD, worked with Adrian Turner, Pharm D and Marry Vuong, Pharm D to develop a new resource to help navigate issues related to invasive procedures.
Join us for an evening of fun and fundraising on October 22 at Third Degree Glass Factory in St. Louis, MO! The evening includes appetizers, dinner, drinks, dancing, and live and silent actions. Buy your tickets now!

Upcoming Events

September 18 - 25
October 2 -30 
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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