February 2022

News & Notes


School staff, medical personnel, extra caregivers and others who interact with your loved one all need a written Seizure Action Plan (SAP) to know what to do in an emergency. We have resources to help you write one and make sure your loved one stays safe.

Learn more.


Do you need assistance in obtaining items that are not covered through insurance? DSF offers grants of up to $1,500 per year for equipment and devices. Applications will be accepted starting on March 1st.

Learn more.


Will you Give Up Your Cup this March for DSF? DSF is challenging you to give up your coffee, tea or other "cup" for one day, one week, one month, or anything in between, then donate what you would have spent to DSF.

Learn More.

We need you! Share your patient perspectives with the FDA on the unmet needs of those living with Dravet syndrome. Submit comments for inclusion in the Voice of the Patient report or participate in our survey on Disease Modifying Therapies by March 4th.

Learn More.

Are you looking for a way to give back to our community? The DSF Family Network needs Parent Ambassadors to assist with social media engagement, participate in virtual & in-person fundraising, and attend virtual & in-person events.

Learn More.


Upcoming Events

March 1 - 31
April 30
San Francisco, CA
June 23 - 25
Fort Worth, TX
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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