School staff, medical personnel, extra caregivers and others who interact with your loved one all need a written Seizure Action Plan (SAP) to know what to do in an emergency. We have resources to help you write one and make sure your loved one stays safe.
Do you need assistance in obtaining items that are not covered through insurance? DSF offers grants of up to $1,500 per year for equipment and devices. Applications will be accepted starting on March 1st.
Will you Give Up Your Cup this March for DSF? DSF is challenging you to give up your coffee, tea or other "cup" for one day, one week, one month, or anything in between, then donate what you would have spent to DSF.
We need you! Share your patient perspectives with the FDA on the unmet needs of those living with Dravet syndrome. Submit comments for inclusion in the Voice of the Patient report or participate in our survey on Disease Modifying Therapies by March 4th.
Are you looking for a way to give back to our community? The DSF Family Network needs Parent Ambassadors to assist with social media engagement, participate in virtual & in-person fundraising, and attend virtual & in-person events.