February 2022

Dear Friends,

You have questions, concerns, or ideas about Dravet syndrome, and this is why we're hosting the DSF Family & Professional Conference this upcoming June. This 3-day event from June 23 - 25 unites families, caregivers, clinicians, researchers, and professionals in the pharmaceutical industry to bring together all groups committed to improving the lives of those with Dravet syndrome.

Just as DSF ensures you never have to navigate Dravet syndrome alone, we want to make it as easy as possible for families impacted by Dravet syndrome to travel to Fort Worth, Texas for the conference. Apply for our family scholarship TODAY to make sure you can attend this biennial event.

We want you to foster new relationships, gain ideas, and feel empowered with patient care. And you can gain all these things plus valuable information about advances in research at the DSF Family & Professional Conference this June. We can't wait to see you there!


Dravet Syndrome Foundation


Get Help With Dravet Syndrome Costs 

Patient Assistance Grant

Did you know that DSF offers grants of up to $1,500 per year for equipment and devices not covered through insurance? Applications opened on March 1st, but they're reviewed on a first-come, first-served basis. Do not delay in submitting your application if you'd like to take advantage of this helpful program.

Takeda SKYLINE clinical trial

Participate in a Research Study

The Skyline Study is a Phase 3 clinical research study of an investigational medication for children, teens, and young adults,
ages 2 to 21, diagnosed with Dravet syndrome. Learn more.

Give Up Your Cup

Make a Venti-Sized Impact

Will you Give Up Your CupDSF is challenging you to give up your coffee, tea, or other "cup," and donate what you would have spent on the drink. It adds up to a big impact. Learn more.

DSF Family and Professional Conference

Attend Our June Conference

The 3-day DSF Family & Professional Conference will be held June 23 - 25 in Fort Worth, Texas. We have scholarships so families can get to this biennial event. Learn more


News and Events

  • 5K for Dravet: A fun event at the Golden Gate Park (14th Ave Picnic Area) in San Francisco, California. This event includes family-friendly activities and light refreshments! Registration begins at 8:30 AM with the 5K fun run starting at 9:00 AM. *Register online before March 28th to guarantee a FREE event shirt!

  • Wings of Hope: Wings of Hope will take place on June 25, 2022 in Fort Worth, Texas at our 2022 Conference. We invite you to sponsor a butterfly in honor or in memory of a loved one for just $25.00. There is no limit to the number you can order!

  • Ciara's Spirit of Hope Award Nominations: Submit a nomination TODAY. We recognize that all of our parents, siblings, and families are heroes every day, but we want to acknowledge those who go above and beyond and who have made a significant contribution for the Dravet community through their work with DSF.

DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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