January 2022
 

News & Notes

 

Are you looking for a way to give back to our community? The DSF Family Network community is growing!  We need Parent Ambassadors to assist with social media engagement, participate in virtual and in-person fundraising, and attend virtual and in-person events.

Learn more.

 
 

We need you! Share your patient perspectives with the FDA on the unmet needs of those living with Dravet syndrome. Share your comments on the livestream EL-PFDD meeting or submit a comment by January 28th.

Learn more.

 

You celebrated your birthday and raised over $96k through Facebook Birthday Fundraisers last year. We hope you will continue sharing your birthday celebrations with DSF in 2022.

Learn More.

Meet DSF Scientific Advisory Board (SAB) member Scott Baraban, PhD. Dr. Baraban's work has led to advancements in drug discovery and repurposing and was featured in National Geographic. 

Learn More.

Meet DSF Medical Advisory Board (MAB) member Elaine Wirrell, MD. Dr. Wirrell's work has had a major impact on patient care and has improved the quality of life for persons with epilepsy.

Learn More.

 

Upcoming Events

January 18
Virtual
February 3
Virtual
March 1 - 31
Virtual
 
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more

 

Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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