January 25 , 2023

Dear Friends,

If a picture is worth a thousand words, a video increases the value tenfold, right? That's the thinking behind our video library. We want to ensure you have access to content that helps everyone — from parents to professionals — navigate Dravet syndrome.

Use the left sidebar to explore specific playlists. You'll find content from past Day of Dravet presentations, webinars for the newly diagnosed, and videos to help with the transition to adult care. We know that Dravet syndrome impacts the whole family, so we ensure that our content helps the whole family.

Take a look and let us know your ideas for future content. We are your partners in this journey. No one walks this path alone, and we've organized our videos to help you along the way.

Thank you,

Dravet Syndrome Foundation


Host an Event!

We are so grateful for the support we receive from our community each time you host an event. Those walks, casino nights, and bicycling challenges increase the public's awareness of Dravet syndrome and related epilepsies and enable DSF to keep our resources free and support flowing to all families impacted by the condition. Moreover, $6.4M in research funding has come from these events. Every event, large or small, brings us closer to a cure.

It is easy to host an event and make a difference. We will guide you through the process every step of the way. Explore our events landing page to get started.


New Clinical Trial

Takeda is sponsoring the Skyline Study, a Phase 3 clinical research study of an investigational medication for children, teens, and young adults diagnosed with Dravet syndrome who are currently using anti-seizure drugs to manage symptoms but still experiencing seizures. Learn more about the trial and see if someone you know qualifies here.

Submit Media

Each time DSF shares your story, we spread awareness to the general public by putting a face to the disease. It's why you see photos and videos on our promotional materials. If you are interested in sharing your child’s photo(s), video(s), and/or story with us, please reach out so we can help the world understand Dravet syndrome, one story at a time.  

DSF Videos

DSF offers a variety of educational webinars and videos to help caregivers and families navigate their loved one’s diagnosis of Dravet syndrome. Find playlists on different topics, from innovative treatments to best care practices to current research. We also have videos from previous DSF educational events. Explore the library and watch the content here.


News and Events

  • VALTOCO Copay Program - The VALTOCO copay assistance program may be helpful at the beginning of the benefit year for patients and families due to deductible requirements from their insurance plan. Patients may pay as little as $20 for each VALTOCO® prescription filled. Click here to access the copay assistance program.
  • Get Your Dravet Swag - Show your support for the Dravet Syndrome Foundation with items from our online shop. We have everything from tumblers, stickers, t-shirts, and more. Shop now.
  • Unite Us - DSF has entered into a partnership with Unite Us, which connects families with vital services, such as peer support. The organization bridges the gap, ensuring families have what they need to move forward, including meeting needs such as food, clothing, and transportation assistance. Learn more.
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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