November 30 , 2022

Dear Friends,

We hope that you were able to take the break last week to connect with family and friends. Dravet syndrome is a lot to navigate, and we hope you were able to build in time to enjoy good meals, build new memories with people you love, and reflect on all you've accomplished this year. Tomorrow begins the last month of 2022.

We are already looking ahead to 2023 and the work we'll do to find a cure for Dravet syndrome. We appreciate your support and encouragement as we work towards new treatments and public understanding. We could not do this work without you. It's possible to still participate in #GivingTuesday if you forgot to donate yesterday. Please consider donating today so we can end the year strong.

Warmly,

Dravet Syndrome Foundation

 

2022 Day of Dravet Recap Videos

Our Day of Dravet workshops bring information about treatments, research advancements, and tips for navigating day-to-day life with Dravet syndrome to our community. The person leading the workshop often takes their personal experience to create a path forward for other families, so you know the conversation and advice come from a place of deep knowledge. We're so grateful that people in our community and medical professionals are willing to share their tips with others.

We've pulled the discussions into recap videos currently available on our site. If you missed Day of Dravet, you can still gain helpful information from videos such as the Caregiver's Guide to Thriving and Turning Insights into Advocacy. To find the 2022 Day of Dravet videos, use the left-side navigation bar and go to the second tab.

 

Unite Us

DSF has entered into a partnership with Unite Us, which connects families with vital services, such as peer support. The organization bridges the gap, ensuring families have what they need to move forward, including meeting needs, such as food, clothing, and transportation assistance. Learn more.

Breakfast Event

The first annual Breakfast with Santa fundraiser benefitting the Dravet Syndrome Foundation is almost here. This event will take place in Sandusky, Michigan, on December 10, 2022, from 9 AM to 1 PM. If you live in Michigan, please join us in person, or donate virtually to this great cause. Learn more.

Shop and Save

Are you a holiday card kind of family? We're partnering with Minted as a DSF fundraiser, and you can support us by ordering your cards from Minted using our promo code FUNDRAISEDRAVET. You'll get 20% OFF your order, and DSF will receive 15% of every purchase made using our code. Start shopping.

 
 

News and Events

  • Host an Event - By hosting a private fundraising event to benefit DSF, you can raise funds for research while also increasing the public's awareness of Dravet syndrome and related epilepsies. Learn more.
  • Get Your Dravet Swag - Looking for the perfect gift? Consider purchasing some of our new Dravet merchandise. We have everything from tumblers, stickers, t-shirts, and more. Shop now.
 
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more

 

Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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