December 28 , 2022

Dear Friends,

Thanks to everyone who supported DSF this year with an end-of-year donation. Your contribution funds our yearly work:

  • Aiding newly-diagnosed Dravet families to navigate treatment and services
  • Supporting our community with up-to-date research and helpful resources
  • Funding research that moves us closer to a cure for Dravet syndrome

And doing all of this with the entire family in mind: the child, their caregivers, and their siblings. DSF has your back so that you can focus on your family.

You still have four more days to double your impact. Our DSF Board of Directors pledged to match any donation up to $25,000. Please give so DSF can continue to provide services to our community.

Happy New Year,

Dravet Syndrome Foundation


2022 AES Conference: What Was Shared

The American Epilepsy Society 2022 Annual Meeting took place in Nashville, Tennessee, from December 2 to 6. This meeting brought together academic scientists, expert clinicians, healthcare providers, pharmaceutical and biotechnology companies, and advocates to share updates in the field of epilepsy. They discussed current accomplishments and future goals. 

We had the pleasure of holding our 13th annual Research Roundtable on Thursday, December 1, just before the start of the AES meeting. During our meeting, we announced the 2022 grant awardees. We hosted a vibrant scientific program moderated by the DSF Scientific Advisory Board co-chairs — Jack Parent, M.D. and Lori Isom, Ph.D.

Read more about our 2022 grant awardees and see an overview of the event here.


Watch Now

We offer a variety of educational videos to help caregivers and families to navigate their loved one’s diagnosis. These recordings provide remote learning opportunities with practical advice on diagnosis, clinical care, current research, caregiver challenges, and more. Watch the videos here.

A Year in Review

In 2018, we posted our 5-year strategic plan to set the foundation's priorities for serving the patient community and provide insight into our goals. As we wrap up 2022, we encourage you to read the final progress report of that plan, which includes some exciting research highlights from this year. Check it out here.

Give Back

Every day we get closer to a cure for Dravet syndrome. We can get there faster with your help. Now, through the end of the year, your contribution will make twice the impact because our DSF Board of Directors pledged to match any donation (up to $25,000). Join our fight for a cure and help us fund research. Donate here.


News and Events

  • Host an Event - By hosting a private fundraising event to benefit DSF, you can raise funds for research while also increasing the public's awareness of Dravet syndrome and related epilepsies. Learn more.
  • Get Your Dravet Swag - Looking for the perfect gift? Consider purchasing some of our new Dravet merchandise. We have everything from tumblers, stickers, t-shirts, and more. Shop now.
  • Unite Us - DSF has entered into a partnership with Unite Us, which connects families with vital services, such as peer support. The organization bridges the gap, ensuring families have what they need to move forward, including meeting needs, such as food, clothing, and transportation assistance. Learn more.
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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