April 27, 2022

Dear Friends,

More voices, experiences, and perspectives strengthens DSF's impact. That’s why we’re thrilled to welcome our three newest board members to the team! We invite you to learn more about them here, but we can't resist sharing just a few reasons why we're excited they are adding their expertise to our work.

  • Josh Goldman and his family have been personally touched by Dravet syndrome, and he’s dedicated to finding a cure while providing resources to patients and families. He brings experience in finance, planning, fundraising, and strategy to the DSF team, helping your donations go farther. 
  • Clare Carey gained a first-hand understanding of the vital support DSF provides families after her daughter was diagnosed at 17 months. Her experience with DSF empowers her to be an incredible advocate on behalf of our patients and a voice for our families. 
  • Nathan Batt brings his personal experience with Dravet syndrome after both his sons received a diagnosis. Nathan joins as a passionate supporter of DSF's work, and his goal is to spread awareness, raise funds, and work with companies to find better treatments, and one day, a cure. 

We can't wait to see all of the incredible ways they'll support our DSF patients and families. Please join us in welcoming Josh, Clare, and Nathan to #teamDSF!  


Dravet Syndrome Foundation


Make Your Child's Birthday Extra Special

Our DSF mascot, Aurora, loves celebrating birthdays! Add an extra surprise to your child’s special day by joining the DSF Birthday Buddies Club to receive a birthday card and small gift from Aurora. Patients of any age may participate, however, at this time, the DSF Birthday Buddies club is only available for Dravet syndrome patients in the United States, and the parent must be a member of the DSF Family Network. Learn more here!


Let Hope Take Flight 

Honor our children, celebrate hope, and remember those who passed by sponsoring a butterfly for the annual Wings of Hope release. Learn more.

Cornhole for a Cause

Test your skills while raising funds to support DSF at Julia Peep's Cornhole Tournament. Can't attend? You can still make a difference. Learn more.

Welcome New Board Members

Join us in welcoming our 3 new board members who began their 3-year term of service on April 15, 2022. See how they'll impact DSF's work. Learn more.


News and Events

  • DSF Conference - Know Before You Go: Joining us for DSF’s 5th Biennial Conference on June 23-25, 2022 in Fort Worth, Texas? Download our 2022 DSF Conference “Know Before You Go” guide for answers to all of your conference questions.

  • 5K for Dravet: A fun event on April 30, 2022 at the Golden Gate Park (14th Ave Picnic Area) in San Francisco, California. This event includes family-friendly activities and light refreshments! Registration begins at 8:30 AM with the 5K fun run starting at 9:00 AM.

DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 | info@dravetfoundation.org

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