August, 10  , 2022

Dear Friends,

Research funding and general understanding increase when we raise awareness and educate the public about what it's like to live with Dravet syndrome.

That's why we recently partnered with Lifetime TV's The Balancing Act to create a special segment focused on Dravet syndrome. "Behind The Mystery of Dravet Syndrome: A Rare Form of Epilepsy" first aired in June, but Lifetime TV is rerunning the segment on Monday, August 22, and Tuesday, August 30, at 7:30 a.m. ET. Additionally, you can also watch the segment on The Balancing Act YouTube channel any time you'd like, so please share the link so more people can learn about Dravet syndrome.

We want to give a special thank you to everyone who helped make this taping possible! It is thanks to the work of all of the participants involved that we can continue to educate others about Dravet syndrome.


Dravet Syndrome Foundation


Participate in Vital Research

Research is our best hope for advancing treatments and eventually finding a cure for Dravet syndrome — and the researchers need your help. Currently, we have a variety of clinical studies available for adults and children meeting different qualifications. If you are interested, we encourage you to see if any of the current studies are right for you. Learn more here.


Family Network

Dravet may have recently entered your life, or you may have been on this journey with your loved one for years. No matter where you fall, we’re here for you. Join our DSF Family Network to get connected with other Dravet families. Learn more.

Walk For a Cure

Steps Toward a Cure is a series of family-friendly events that raise awareness and funds while celebrating our Dravet superheroes. Consider hosting a Steps Toward a Cure in your area, or join one of our upcoming walks! Learn more.

Watch Our Recap

While the 5th biennial DSF Family & Professional Conference may be over, you can still catch all of the great information and fun we had! Recorded sessions are now available on our website for on-demand viewing for our entire community. Learn more.


News and Events

  • Cycle For a Cure - There are still a few more weeks left for you to get in your cycling miles to help us Cycle For a Cure! Now through the end of the month, consider registering for our Century Ride challenge and track those miles to help us cycle towards a cure for Dravet syndrome.

  • Steps Toward a Cure - Steps Toward a Cure is going virtual! If you've been wanting to participate, but have not had an event in your area, now is your chance to get your steps in with us from wherever you are. Join us virtually September 18 - 25, 2022, or see our upcoming in-person events below:

  • DSF Casino Night - Our Casino Night fundraiser includes casino games, dinner, sponsorships, live and silent auctions, and more. It is a great excuse for adults to have a fun night out while supporting a cause they care about! Find an upcoming Casino Night in your area, or we'd love for you to host your own! Upcoming Casino Night events:

  • Dance for Dravet - Dance for Dravet is an annual fundraising event organized by the Brennan and Odlaug families to raise funds for the Dravet Syndrome Foundation. This year's event will take place on October 14, 2022 at Third Degree Glass Factory in St. Louis, Missouri.

DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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