August 24 , 2022

Dear Friends,

A life-changing, recharging, information-gathering day is quickly approaching. Our 2022 Virtual Day of Dravet workshop is almost here! This year’s one-day workshop takes place on Saturday, September 24, from 12-5 pm ET, followed by caregiver lounges from 6-7 pm ET.

Learn about research and treatment options, connect with other Dravet syndrome families, and be part of DSF’s shared vision for a better outcome for those affected by Dravet syndrome.

We encourage you to check out this online event and get accurate information to help you make confident and appropriate decisions regarding your loved one’s care. Sessions are presented by community experts – including other parents.

There are no registration fees for this year’s event thanks to the generous support of our sponsors.

Learn more and see the full agenda of speakers and sessions here.


Dravet Syndrome Foundation


Now Enrolling for Longboard PACIFIC Study Trials

Longboard Pharmaceuticals, Inc. is testing the investigational drug LP352 for patients with Developmental and Epileptic Encephalopathy (DEE), including Dravet syndrome. LP352 is a serotonin-modulating drug (called a 5-HT2C superagonist).

In this study, researchers want to test the safety of multiple doses of the investigational drug LP352 and find out how it works when given in addition to an antiseizure medication to patients with DEE. The study will assess any adverse events as well as changes in motor seizure frequency.

This trial is now enrolling participants ages 12 to 65 who have been diagnosed with DEE.

Learn more about how to enroll or view our other clinical trials here.


Day of Dravet

Join us for DSF’s Day of Dravet Workshops on September 24. This is a time for our community to come together to learn about research and treatment options, connect, and be part of DSF’s shared vision for a better outcome for those affected by Dravet syndrome. Learn more.

Plan Your Giving

“I wish I could do more” are words we often hear from the thoughtful people who support the Dravet Syndrome Foundation's mission. In truth, you can do more for the future of DSF and the future of our community through carefully planned gifts. Learn more.

Share Your Story

Love our work? Tell the world! Stories about us from people like you help us make an even bigger impact in our community. GreatNonprofits – the #1 source of nonprofit stories and feedback – is honoring highly regarded nonprofits with their 2022 Top-Rated List. Learn more.


News and Events

DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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