September 13, 2023
Logo with updated tagline

Dear Friends,

We know you've probably heard of the traditional ways to give back, such as creating a fundraiser or making a donation directly online. But there are many creative ways to give that you may not have heard of. If hosting an event or posting on Facebook isn't your thing, we've got a lot of other opportunities for you! Instead of an outright cash donation, consider giving through stocks, a living will, cryptocurrency, or your IRA.

With giving season almost upon us, the ways you can give back are endless! Learn more about different ways you can make a difference here.

Thank you,

Dravet Syndrome Foundation


DSF Celebrates Hispanic Heritage Month

Hispanic Heritage Month is Sept. 15 - Oct. 15 and this year's theme is Prosperity, Power & Progress. We want to take this time to honor and celebrate our Hispanic community, as well as recognize the many Hispanic individuals impacted by Dravet syndrome. In preparation for this month, we've connected with this community to hear their stories, celebrate their families and recognize the hardships they face.

We encourage you to follow along with us on our social media channels as we share quotes from our Hispanic community throughout the month. If you'd like to share your journey, we encourage you to submit your photos and story here or reach out to our DEI Coordinator, Tatiana Lopez, at


Heart to Heart

Our September Heart to Heart session is almost here! Join our community for this virtual meeting on Monday, Sept. 25, as we connect for thoughtful and productive discussions. 

We offer both daytime and evening sessions. You must register to attend these events but you are welcome to attend both or choose the one that works best for you. Register for the daytime session here or the evening session here.



Day of Dravet

We invite you to join us for a Day of Dravet Workshop near you! This is a time for patients and their families to come together to learn about research and treatment, connect with one another, and be a part of a DSF’s shared vision for a better outcome for those affected by Dravet syndrome.

Workshops will be held in various locations across the United States. See which workshop is closest to you here.

Dance for Dravet

Hosted by the Brennan and Odlaug families in honor of family member Anna Odlaug, who has Dravet syndrome, Dance for Dravet continues to be the largest fundraising event for DSF in the nation!

This event is taking place in St. Louis, MO on Oct. 6. Those in the area are invited to attend, or you can consider sponsoring or donating to the event from anywhere! Learn more about Dance for Dravet here.


News and Events

  • Clinical Trials - Learn about upcoming clinical trials and see if any may be right for you and your family.
  • PAG Grant - We are still offering funds to families in need. Learn more about our patient assistance grant here.
  • Steps Toward A Cure: Midlothian - Walk toward a cure with us in Midlothian, Illinois. Learn more.
  • Dance Away Dravet - Join us this weekend in Jamison, PA as we Dance Away Dravet. Learn more.
  • Steps Toward A Cure: Milford - Join us in Michigan as we walk for a cure together. Learn more.
DSF moderates private support groups for parents and caregivers of loved ones with Dravet syndrome.
These are great resources for families to ask questions and find support. 
Learn more

DSF is proud to be a GuideStar Platinum Nonprofit Profile participant.
Platinum lets us show quantitative metrics on the progress we’re making toward our mission!
Learn more


Dravet Syndrome Foundation
PO Box 3026  | Cherry Hill, New Jersey 08034
203-392-1955 |

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